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Black and Red Licorice

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Just when one baby is out of the hospital we are back with another for some follow up #eeg tests. #lifeofaspecialneedsmom 😎 . I cannot say this enough, it truly is #neveradullmoment in our daily schedule. 🥴 . . . . #lovemycrazybigfamily #medicallycomplexkids #oxygenbaby #ceberalpalsy #epilepsy #chroniclungdisease #medicalmom #mommyunplugged #momstruggles #crps #disability #specialneedmom #babylove #lifeisanadventure #momwithspecialneedschildren #momwithmultiples #adoption #lovemadethisfamily #inclusion #homeschoolmom #motherhood #radychildrenshospital #momlife #momblog #blackandredlicorice #partyof15

Our Baby Boy is Seven Months old Today 💙. . He has spent most of the last four months in the hospital all except 16 days. . He has shown us so much. I can honestly say I know the true define meaning of love, faith, family, strength, support and advocate. . Boundaries have been tested, pushed and crossed with his medical teams so much I have lost faith in some. . However that has not stopped this little to show this #mamabear the way for his needs. Remembering to not lose sight of what's right in front, not to stop questioning his medical teams nor not to take "no" for an answer. . We are blessed that today you are HOME but know through all the ups and downs, I will continue to research for an answer that continues to baffle your medical teams. Always...Love you my Son! 😍 . . . . #lovemycrazybigfamily #encephalocele #vpshunt #csfleak #medicallycomplexkids #ceberalpalsy #treachercollins #medicalmom #epilepsy #crps #theablefables #radychildrenshospital #doctormom #nevergiveup #specialneedmom #momlife #lifeisanadventure #mommyunplugged #largefamilylife #momof11 #luckyfinproject #adoption #momblog #mommyhood #momwithmultiples #twins #irishtwins #blackandredlicorice #partyof15

He is such a Trooper! . He literally has spent almost the last three months in the hospital. 😭 . I cannot count how many needle sticks, pokes, NPO orders, scans, x-rays, different procedures; let alone the road map of scars that has been placed on his beautiful head. . He received today a #vpshunt though he does not present typical for #hydrocephalus...his #csffluid and body thought otherwise. . Hopefully this fifth PICU admission will be his last for a while as well any unscheduled surgeries. . Again I cannot say how grateful and blessed we are for all the support. This road is not easy, at times is lonely and full of many emotions but is also filled with beautiful happiness. I thank you all for your prayers and thoughts and most of all for following our crazy daily rollercoaster. . . Much Love and Blessings ❤️ xoxo Julie . . . . #lovemycrazybigfamily #encephalocele #medicallycomplexkids #ceberalpalsy #treachercollins #medicalmom #epilepsy #crps #radychildrenshospital #doctormom #neveradullmoment #specialneedmom #momlife #lifeisanadventure #mommyunplugged #largefamilylife #momof11 #luckyfinproject #adoption #momblog #mommyhood #momwithmultiples #twins #irishtwins #blackandredlicorice #partyof15

Home Safely but now Hospital Bound! . My heart hurts for our littlest 😭. #csfleak #medicallycomplexkids . . . . #lovemycrazybigfamily #medicalmom #encephalocele #luckyfinproject #faith #ceberalpalsy #treachercollins #medicalmom #epilepsy #crps #doctormom #neveradullmoment #momphotog #specialneedmom #momlife #lifeisanadventure #mommyunplugged #largefamilylife #momof11 #adoption #momblog #mommyhood #momwithmultiples #twins #irishtwins #blackandredlicorice #partyof15

We went on a family #roadtrip and our kids were able to meet their cousins while being on a crazy #adventure . ♥️ . However early in the week our littlest one caused for alarm where we have been going back and forth with his medical doctors in California plus I reached out to one the groups I belong in. I honestly cannot say thank you enough about the support received @facfamilies Plus there are a few Mama's who need extra thanks too . Now we got caught in a dilemma of making flight arrangements for me and the baby to get to a new hospital for medical treatment or leave early to get back home. . So I am here to say in less than two hours we will be HOME . . , #lovemycrazybigfamily #cousins #makingmemories #medicallycomplexkids #medicalmom #encephalocele #luckyfinproject #medicallycomplexkids #ceberalpalsy #treachercollins #medicalmom #epilepsy #crps #doctormom #neveradullmoment #momphotog #specialneedmom #momlife #lifeisanadventure #mommyunplugged #largefamilylife #momof11 #adoption #momblog #mommyhood #momwithmultiples #twins #irishtwins #blackandredlicorice #partyof15

These two are nothing but some Sugar and Spice! . #siblinglove #kidslovetoplayintherain . . . #lovemycrazybigfamily #familytime #caliweather #epilepsy #autism #crps #siblinglove #mommyunplugged #momlife #momwithmultiples #momwithmultiples #specialneedsm #mommyunplugged #mommyhood #sensoryprocessingdisorder #largefamilylife #liveinthemoment #lifeoftoddlers #homeschool #wildandfree #instagramfamily #homeschoolkids #newadventures #momof11 #daughters #sons #muddypuddles #blackandredlicorice #partyof15

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